A mother has delineate however her daughters weigh simply 3 stone (42 lbs) between them despite being 9 and fourteen, once each were born with inherited disorder and a rare neurologic condition.
Lola and Claire David Hartley square measure simply 5ft tall between them and square measure thus tiny they're carried around in their mother's arms.
They are severely disabled, visually impaired, cannot walk or speak and suffer regular seizures.
But despite the challenges of delivery them up, their mother Gwen says they still get pleasure from activities typical of young ladies - like being attentive to rap and looking wedding programmes.
The sisters were each born with inherited disorder also as a rare neurologic condition known as nanocephaly, that is related to a size of the top and incomplete brain development.
After the eldest Claire was born, doctors told Mrs David Hartley and husband Scott that she would not survive past a year.
They became determined to hold dear every moment with their girl, preceding medicine and feeding her a healthy diet, and she or he defied doctors to survive.
Now, despite their daughters' disabilities, Mrs David Hartley, from Kansas says they carry the family nice joy.
She said: 'People forget they are|that they are} nearly 10 and fifteen as a result of they're thus tiny. Claire is 3ft tall and weighs 23lbs and Lola is 2ft and 12lbs.
'Some individuals react unsuitably. they do not perceive and purpose, stare and create faces. They say, "They're however old?"
'Others say, "Oh my gosh, am i able to hold her?' and say however cute they're as a result of I will hold them in my arms.
'Some see them like they seem to be a spiritual expertise, like they are holy or angelic.
'But they are like several alternative ladies, they like rap and watch TV, and that they have their own personalities.
'Claire is ordered back and goes with the flow, whereas Lola is feisty and impoverished. She desires to be cuddled all the time.'
Mrs David Hartley had a standard gestation and a scan she had at nineteen weeks failed to show any signs of abnormalities.
But once Claire, now 14, was born, she had alittle head and body, and at 3 months recent, she was diagnosed with nanocephaly.
This a neurologic condition wherever Associate in Nursing infant's head is considerably smaller, and their brain doesn't develop within the same method.
It is typically is that the results of the brain developing abnormally within the uterus or not growing because it ought to once birth.
To their horror, man and Mrs Hartley were told their female offspring would be unlikely to measure to envision her 1st birthday, and she or he became terribly scraggy and struggled to stay down food.
Mrs Hartley said: 'It was a shock to envision her once Claire was born.
'When she was diagnosed, we tend to were told that some folks with the condition did well and will become older to run and speak and live till their forties.
'But others suffered seizures and solely lived till they were one.
'At the time, Claire would vomit when every feed thus she wasn't gaining weight, and that i was told she would possibly die from respiratory disorder.
'We were told to arrange for the worst.'
They determined to love on a daily basis they'd with their female offspring, feeding her a diet of fruit and vegetables, meat, eggs, and goats milk beside natural supplements.
She said: 'We'd been told if we tend to place her on medicine and tweak these till we tend to had the proper band for her, we'd be lucky to induce a year together with her.
'So we tend to determined to travel home and take a look at one thing a lot of natural to envision what happened.'
'We felt like we tend to were living on borrowed time, waiting around for her to induce sick.
'But we tend to tried to envision on a daily basis we tend to had together with her as if it absolutely was a present.'
Soon, she stopped reflex and gained weight, that allowed her body to grow stronger.
She suffered a chilly at seven months previous, that her mother admitted she thought was 'the starting of the end', however recovered.
Five months later, her oldsters celebrated her 1st birthday with an enormous party, because it was a milestone they ne'er thought they'd see.
Then, once Claire was four, Mrs David Hartley fell pregnant with Lola.
Test within the uterus unconcealed she too suffered from microcephalus, and tho' a termination was mentioned, Mrs David Hartley refused it.
She said: 'Lola was on course then at twenty six we tend toeks we were told her head measurements were 5 weeks behind what they must be and she or he had the condition.
'We treated her like we tend to had with Claire, though, and she's been fine.'
The girls cannot walk, speak or create any movements to feed themselves, dress themselves or play.
They even have daily seizures, however these aren't painful and do not prohibit their respiratory.
Doctors don't grasp if they'll ever learn to speak or move, however Mrs David Hartley aforementioned recently she was delighted to visualize Claire seem to push her glasses.
Their oldsters act with them mistreatment sensory toys during a darkened area, and Mrs David Hartley aforementioned they need personalities of their own.
She said: 'They create sounds, communicate with their eyes and that we grasp they will perceive US.
'They smile and laugh and recognise folks. {i grasp|i do know} they know WHO we tend to ar.
'They're like several different ladies they are age. They like felon rap, R&B and pop. They like Eminem.
'They love the beat and Claire smiles once rap comes on the radio.
'When their academics play them nursery rhymes they give the impression of being bored and pull faces.'
The girls also are huge sports fans and their huge brother Cal, 17, has concerned them in basketball games by asking his team to fist-bump them as they run on to court.
Mrs David Hartley aforementioned her daughters area unit 'like celebrities' within the area people.
She said: 'The ladies have grownup up within the same community and therefore the community embrace the women. they are like very little celebs here. they are acknowledge.
'Their brother, Cal, is admittedly pleased with them. he is ne'er aforementioned he is unhappy that they're the approach they're.
'When i used to be pregnant with Lola, and that we weren't certain if she'd survive, he said, "I do not care if she lives long, I simply need to grasp her, even for a trifle bit."
